Publications –
primary and secondary immunodeficiency

IDFA has a range of publications about immunodeficiency freely available for you to download. Most publications have been created for primary immunodeficiency patients however much of the information is also suitable for those living with secondary immunodeficiency.

If you are an IDFA member you can request hard copies for yourself, your family, school and any of your treating clinicians.

Immune Deficiency Foundation (America) publications

IDF Patient & Family Handbook 6th Edition (e-resource only)

IDF Patient & Family Handbook 5th Edition 

International Patient Organisation for Primary Immunodeficiencies (IPOPI) publications

Diagnosis of Primary Immunodeficiencies

How are PIDs Classified?

Management after diagnosis

Treatments for PID’s: a guide for patients and their families

Immunoglobulin Therapy – One Size Doesn’t Fit All

When to give Immunoglobulin Replacement Therapy

Plasma derived therapies

SCIg infusions: a practical guide for patients

Guide for Internal Medicine Specialists

Hematopoietic Stem Cell Transplantation

A Practical Guide for GP’s

PIDs and Gastrointestinal disorders

PIDs and respiratory disorders

Autoimmunity and autoinflammation

Primary Immunodeficiencies in Adults

Vaccines and Primary Immunodeficiencies

Primary Immunodeficiencies and Allergies

Primary Immunodeficiencies and Infections

Primary Immunodeficiencies and Psychological Management

Stay Healthy! A Guide for patients and their families

A Guide for schools

Moving from child to adult care

A Guide for Pulmonologists (e-resource only)

A Guide for Gastrointestinal Specialists (e-resource only)

Value of SCID Newborn Screening

APDS – Activated PI3K Delta Syndrome (e-resource only)

CGD – Chronic Granulomatous Disease

CVID – Common Variable Immunodeficiency

XLA – X-Linked Agammaglobulinemia

SCID – Severe Combined Immunodeficiency

WAS – Wiskott-Aldrich Syndrome

Hyper IgM Syndrome

IDFA Publications

IDFA Fatigue Pamphlet

IDFA Secondary Immune Deficiencies Booklet


Our Immune System by S. LeBien